I have Coeliac Disease — not an allergy but an autoimmune disease — but it can also have delayed symptoms. Some of them quite serious and affecting me for years.
Few people in Japan have Coeliac Disease and most doctors here are totally unfamiliar with it. As far as I know there is no doctor in Japan specializing in it.
When I was finally diagnosed in 2009 Coeliac Disease tests were not even available in Japan. That probably is still the case today. Actually, I occasionally still get a blank stare when I tell a doctor I have Coeliac Disease.
As a result, it took several decades before I was finally diagnosed correctly.
Until then, doctors told me I suffered from stress, a dislocated disk in my neck, or came up with other imaginative and unimaginative explanations to explain my constant exhaustion, migraines, and other health issues.
I believe I still have one more undiagnosed health issue. It might be a good idea to look into delayed allergies. Any idea how and where in Japan one gets tested for these?
H, thank you for sharing your experience. I can only imagine how difficult it must have been to go undiagnosed for so long, especially in Japan, where awareness of Coeliac Disease is still quite low.
Regarding your concern about a possible undiagnosed health issue, I’d be happy to help you look into it. If you can share more about your symptoms or what you suspect, I can research whether there are specific tests available in Japan that might help you get closer to an answer.
Wishing you the best with your health, and let me know how I can assist!
This is similar to EoE but it's not an allergy and can take a years before the esophagus has constricted enough to feel the effects. An absolutely awful disease but I finally oveercome it through a modified diet and omeprazole.
Good that you write about this, Miki.
I have Coeliac Disease — not an allergy but an autoimmune disease — but it can also have delayed symptoms. Some of them quite serious and affecting me for years.
Few people in Japan have Coeliac Disease and most doctors here are totally unfamiliar with it. As far as I know there is no doctor in Japan specializing in it.
When I was finally diagnosed in 2009 Coeliac Disease tests were not even available in Japan. That probably is still the case today. Actually, I occasionally still get a blank stare when I tell a doctor I have Coeliac Disease.
As a result, it took several decades before I was finally diagnosed correctly.
Until then, doctors told me I suffered from stress, a dislocated disk in my neck, or came up with other imaginative and unimaginative explanations to explain my constant exhaustion, migraines, and other health issues.
I believe I still have one more undiagnosed health issue. It might be a good idea to look into delayed allergies. Any idea how and where in Japan one gets tested for these?
H, thank you for sharing your experience. I can only imagine how difficult it must have been to go undiagnosed for so long, especially in Japan, where awareness of Coeliac Disease is still quite low.
Regarding your concern about a possible undiagnosed health issue, I’d be happy to help you look into it. If you can share more about your symptoms or what you suspect, I can research whether there are specific tests available in Japan that might help you get closer to an answer.
Wishing you the best with your health, and let me know how I can assist!
That is very kind of you, Miki. Thank you.
This is similar to EoE but it's not an allergy and can take a years before the esophagus has constricted enough to feel the effects. An absolutely awful disease but I finally oveercome it through a modified diet and omeprazole.